Santi Huron

New Blog!

2009-07-13T13:18:00.006-04:00

Hello Everyone!

We want to announce our new blog, http://www.huronfamily.blogspot.com/! In addition to Santi's blog updates, we will be blogging everyday happenings in the Huron home! We hope you enjoy!

My Country 'Tis of Thee

2009-07-04T12:39:00.000-04:00

You're a Grand Old Flag

2009-07-04T09:27:00.003-04:00

Here is our little Samuel singing, "Your a Grand Old Flag"...

Happy Birthday, Peter

2009-07-02T20:18:00.004-04:00

June 22nd was Sweet Pete's birthday!! We laugh to ourselves when we think of Peter...when he was four, he seemed to be four, forever! Then five finally came around and then here he is, already six. Six!!

We love you, Peter James. Happy Birthday!

Peter had a fun treasure hunt and even had to find a clue that was attached to our sprinkler. =)

We all had such fun hiding his clues...

(click to view larger )

Happy Father's Day!

2009-06-22T08:20:00.005-04:00

We wish our father a happy Father's Day!

We love you!
Anita, Josh, Heather, Luke, Cilicia, Alexis, Olivia, Ben, Treasure, Paul, Santi, Jon-Michael, Peter, Samuel and Titus

Anita

Josh and Heather

Luke

Cilicia

Alexis

Olivia

Benuel

Treasure

Paul

Santi

Jon-Michael

Peter

Samuel

Titus

He is Risen Indeed...

2009-04-13T19:34:00.002-04:00

George Washington Carver

2009-04-07T16:24:00.004-04:00

Our history class (Paul, Santi, Jon-Michael and Peter) have been studying the life of George Washington Carver for the last few weeks, and we decited to invite a few people over for a "peanut meal" and history panel to wrap up the whole unit.

We had so much fun!

Anita

$.20 of Koolness

2009-04-02T16:23:00.005-04:00

With the warm weather unpacking it's bags and settling here in Florida, who wouldn't want one of these deliciously cool popsicles?! The boys bought these nifty popsicle containers a few weeks ago and have enjoyed pouring juices or Kool-Aid into them. When we went shopping last week, we had to remember to buy some packets of Kool-Aid...Peters request. We had the cashier put the little packets in a special little bag so that we could give it to him all separate....it's amazing how $.20 will make a child so happy!

Anita

Santi...

How much do you have left??

Sweet Pete...

Samuel...

Hurry, hurry! It's melting!

Good to the last drop...

Boston Comes to Florida

2009-03-24T17:03:00.011-04:00

Getting ready for a new cast...

Is Spring already here? It's hard to believe that orange blossoms are already scenting the whole state of Florida and that everyone's air conditioners are humming away. Actually, we are still hoping to get one more bonfire in before Summer. We have a nice stack of brush and wood to burn in the back yard...a perfect opportunity for some marshmallows and chocolate?

It seems that so much has happened over the last couple of months, and we have been skipping the blog updates. In part, this is good as Santi has been doing GREAT and there hasn't been "breaking news" to share, but as Christians we know there is always something to share that will edify others as the Lord constantly blesses and provides. So, here are some pictures and an update about Santi's new brace!

Dr. appointment...

Stretching before casting

Santi went to Gainesville Prosthetics last month and was fitted for a brace that will help him stand up straighter and mainly to remind him to keep good posture. The brace is called a Boston Brace. Santi has had a few different braces over the years, but so far this brace, with the radical surgery he had seven months ago, really seems to be helping. We are so excited! We can't say enough about DeAnna Clough who fitted Santi for his new set of armor and Paul Prusakowski who made sure it was made just right and fit nicely. Everyone has been so kind and encouraging.

Plan of action

Being fitted for the Boston Brace...

DeAnna and Santi with his muscle man cast...

As you will see, the brace isn't all that comfortable looking, but Santi is a trooper and wears the brace off and on throughout the day. He doesn't wear it when he eats as he needs all the stomach room he can get! Just as a side note: for those who have been praying about his eating, he is doing the best in years, and finishing his whole plate is a piece of cake....did I say, AND a piece of cake?....yah...that too. =) Vanilla with sprinkles.

DeAnna, a wonderful blessing...

The real thing...

Santi is enjoying school....especially history class with Alexis. Anything with dates is up Santi's alley! He has such a memory and worked hard to memorize over 15 facts about President Abraham Lincoln. Now, it's on to George Washington Carver. It's so wonderful that Santi can just keep going as he does...the Lord's grace is abounding.

Anita

Dad, Santi, Pete and Jon-Michael

Santi wearing his brace...

I'm Saved!

2009-03-17T17:17:00.002-04:00

Today we were talking of the color green for Saint Patrick's day, and Santi jumped up to put on this green shirt!

Titus, Samuel, Santi and Peter

Blow, Blow, Blow!!

2009-03-03T22:21:00.002-05:00

Ten Plus One!

2009-03-03T07:33:00.004-05:00

Today is Santi's birthday!

We are so grateful to the Lord that we are celebrating eleven years with you, Santi!

Happy Birthday! You're one-of-a-kind!

Tough and Spiny

2009-01-30T20:15:00.011-05:00

What do gators and Santi have in common?

They're both tough, strong, and.....spiny!!

Santi had an appointment with Dr. Woo in Gator territory at Shands. We haven't updated the blog in a while so here we will fill you in on how our Santi has been doing....

Santi greeted by Dr. Woo

Santi recovered remarkably well from his surgery on August 18th. He was even able to maintain his weight and not lose too much which is unusual following surgery of any kind. Santi is still the skinniest alligator I've ever seen, but we're counting our blessings, OK?

Think big thoughts, Santi!

He has grown and inch and a half but didn't gain weight since his last appointment! Oh well. He loves food...especially McDonald's burgers and fries and he can put that stuff away. Where do the calories go? If I ate that way, I'd weigh 600 pounds by now.....

1 1/2 inches taller!

The key to Santi's progress at this point is daily therapy exercises and his Dad is very faithful to spend time doing that with Santi. It's easy for muscles to stiffen after such a radical spinal surgery so we are trying to keep him limber and stretched. Sometimes the exercises really hurt but Santi has a high tolerance level for anything he knows is necessary. He also spends time on his bed on his tummy. He looks incredibly straight after lying in this position for even just 30 minutes. At other times, a verbal reminder to "straighten up" helps him to adjust his posture.

Pain issues are very few and far between. What a miracle this is. Santi doesn't need pain medication at all unless he's had a long, physical day or has been sitting in one position for a long period of time. He sleeps well and plays well.

Dad, Santi and Jon-Michael

Thank you for continuing to pray for Santi and love him. He still needs prayer for weight gain and strength for the daily regimen of therapy. We will be going back to Shands next week to have Santi fitted for a brace. The brace should help with the maintenance of the posture we need for him.
Keep this Gator in your prayers!

Deanna, from Orthotic and Prosthetic Services
will be making Santi's new brace next week

Love to all,

Mom

Company...

2009-01-30T19:30:00.005-05:00

Some of our good friends, the David Keener family from north Georgia, were down in Florida for a few days, and stayed overnight with us! We were so excited to have them in our home! This family has always been there to pray for us and support us for over 10 years now. It was so special to meet Mrs. Holly's mother, to hear "I'd Rather Have Jesus" sung by Mr. Keener and laugh when Abe said he slept without even snoring or moving because his over six foot body was in a twin bed.

We were also introduced to the IPhone....those things are so neat!

Thank you, Mr and Mrs. Keener, Abe and Mariah for stopping by!

Mariah and Samuel

Mr. Keener

IPhone

Laughing over "Chicken Bird"

(Interpreted: Road Runner)

Santi setting the table for breakfast...

Singing hymns in the living room

Listening to interesting stories...

Mrs. Maxine

Happy Anniversary

2009-01-30T17:10:00.004-05:00

Our parents are celebrating 25 years of marriage! We are so grateful for them and for the wonderful example of devotion and true love to us children.

"What God hath joined together, let no man put asunder..."

The Lord bless you, Daddy and Mom!
Anita, Joshua, Luke, Cilicia, Alexis, Olivia, Benuel, Treasure, Paul, Santi, Jon-Michael, Peter, Samuel and Titus

25 years ago...

Today...

Happy Birthday, Ben!

2009-01-30T16:32:00.005-05:00

Happy 16th Birthday, Ben!

Gingerbread Men

2008-12-26T14:39:00.001-05:00

A little of this and a bang of that...

2008-12-26T13:53:00.009-05:00

We thought it would be fun to make Christmas cookies for our neighbors, so we set out to make gingerbread men! After dividing the dough into four parts, they got to it! There was much flour flying and rolling pins banging.....banging?....it had to be explained that rolling pins roll....not bang. Titus (1) just wanted to be in on all the action, so we gave him a little flour to play with. When it was icing time, you had to keep a keen eye on those M&M's! Mom came in the kitchen to see all the mess and left laughing as she said her grandchildren will be the most artsy children, but her daughters will probably have a messy house. Of course, we laughed and said she was wrong....we would just do all the baking at the sister's house that was clean. =) The kitchen was a mess, but the boys had such fun. After seeing all the finger licking and wiping on the shirts, we decided we wouldn't burden our nice neighbors with such sweet contamination, so Olivia kindly made fresh, "clean" cookies for them the next day.

Enjoy the pictures above...

Family Christmas Pictures [behind the scenes]

2008-12-26T10:44:00.001-05:00

Every year we take a family picture, and every year, we come home look at all the shots and mom laughs so hard she has tears coming down her face from all the funny faces everyone makes during the 200+ pictures that are taken. We don't necessarily look for a "perfect" family shot....simply one shot that everyone is looking at the camera. =) Of course, we have sister/brother shots, just the girls, just the boys...etc. This year, we chose the coldest day in Florida history to take our picture. =) Maybe we should try and do this from now on, because we only had to take 4 pictures! It either had something to do with the cold weather or the hot chocolate that was waiting at home...

Anyway, we didn't end up with such hilarious "behind the scenes" this year...there's always a first!

Santi

Alexis and Ben

Cilicia and Alexis

Sweet Pete

Anita, Cilicia, Alexis, Olivia and Treasure

???

Hmmm....

Our little men

Setting up...

Our wonderful parents...

Tybee Pictures

2008-10-31T16:38:00.001-04:00

Georgia Pictures

2008-10-31T16:37:00.001-04:00

Santi Goes Abroad

2008-10-31T15:00:00.009-04:00

At the beginning of the year, a family trip wasn't even a thought, much less a possibility. We still didn't know when Santi would have a surgery date, and it was hard planning such things as vacations when the unknown was...so unknown! Even when we did finally have a surgery date, traveling seemed out of the question.

Fast forward a few months, Santi is recovering, and small vacation talk is being talked.....why? We received a call with someone out of state blessing us with a home to stay in, if we would like, on Tybee Island, GA.

After much prayer, planning, and excitement, we pulled out of our driveway early last month, Tybee bound! Suffice it to say, we have never been to a more beautiful place....well, Dad says it's almost as beautiful as the mountains. =)

We agreed that if it had rained every day we were away, we still would have had a wonderful time, for it wasn't as much as the places we were staying, but rather, just all of us being together. We enjoyed the sun, just as much as the thunderstorm that moved across the ocean.

We had the honor of speaking and singing in three churches, whom we love dearly and who have prayed for Santi faithfully. This was such a blessing for us to be able to go and share God's goodness to Santi and our family. Who would have thought that Santi could stand up and testify of God's goodness just two months after surgery?!

We packed "traveling food"....you know, the foods you don't normally indulge in on a regular basis...and travel the many miles to enjoy real southern sweet tea and learn to once again say, "Hey Y'all!" instead of just plain, "Hi!". Did y'all know it was fawl up yonder? My, those trees are a Floridian's wonder...

Well, since our blogging staff seemed to take a holiday, =) we thought we'd share some of our pictures with you. We tried sitting down and picking a few, but that seemed an insurmountable feat, as our photographer...ahem....seems to be camera happy. =) So, just click play and enjoy the slide show...

As always, we thank you for your continued prayer and support. Please keep praying!

Anita

Sant's Doctor Appointment

2008-10-30T18:45:00.007-04:00

Santi and Jon-Michael talking while in the waiting room at Shands today

Hello All!

It's been some time since you've been in touch with Santi! Santi's doing great.

Today he had a routine check-up with Dr. Woo and all went well. One of our biggest prayers has been on behalf of Santi's weight gain. Well...he gained a pound!! .....for Santi, that's BIG....=) We tease Santi by telling him that we can tell when he gains weight by how kinda pudgy his nose looks...we think it's getting there!

One thing that Santi will be working on with more vigor and regularity, is his therapy. So far, Santi has been in a healing process with not much "hard" therapy. Today started some therapy that will work Santi's muscles, hips, and about everything else that is connected to the waist on down. He will start using a walker as part of therapy in order to help him stand straighter, and practice walking in a different way. So far, the only way Santi has walked, has been hunched over, and with a little shuffle. Santi doesn't have to walk that way anymore...Santi CAN'T walk that way anymore. The Dr.'s need Santi to practice hard on posture or there will be consequences for Santi's body if he doesn't.

Well...I think I've covered about all of it! The Lord continues to meet and provide for Santi, as well as for our whole family. God is is an amazing God...

For Santi and the Hurons,

Cilicia

Santi and his Doctors

Dr. Woo showing Daddy some therapy exercises

Santi and his pound!

Santi and one of the Doctors

Shands hospital is located in the same town as UF (University of Florida). The Florida Gators are a big thing at Shands along with all the other sports! This the Hall Of Sports at Shands!

Happy Birthday, Anita!

2008-10-01T17:00:00.005-04:00

Today we celebrated Anita's Birthday! The last Birthday was quite awhile ago, so Santi was kinda rusty on the birthday song!

Happy Birthday Anita!!!

This Life I Live...Coming Soon!

2008-10-01T16:02:00.007-04:00

We have had the joy and privilege of being interviewed and filmed by IVL Media of Florida. This Life I Live, doesn't dwell on the Huron family, rather, the faithfulness of our Lord, Jesus Christ. We are humbled and blessed to have been able to participate in this project. We hope you enjoy the trailer! The trailer is a little clearer if you visit the official website. =)

Here is a little expert from the cover...

We invite you to celebrate the faithfulness of God as we explore some of the many ways God has shown himself faithful to this amazing family. God is faithful in provisions. God is faithful in life. God is faithful in infirmities. And God is faithful in death. The Huron family has experienced all of the above and in each instance, they have experienced the Joy that comes from trusting their awesome and loving Heavenly Father.

Coming soon!

Skittleache

2008-09-15T17:10:00.002-04:00

We would all have to agree....skittles are just fun. They come in all colors, and oh so many flavors. Have you all noticed the newest skittle invention? Yes...chocolate!

Santi loves these fruity tasting candies...they are very high on his favorite list. When he received a surprise box in the mail (Thanks Sheltons!) containing 3 whole packages, it was candy heaven. I think "just one more" turned into a few more, and Santi ended up with a skittleache. After a little lecture from Mom, Dad said, "Santi, did they taste good?".....Santi brightened and said, "Yes Sir!"

Noah and Santi

2008-09-12T09:15:00.003-04:00

Some of you may remember the little yellow truck Noah have Santi while in the hospital a couple of months ago....

Just this week, Noah and Santi were able to see each other again...Santi a little more perky this time! These guys are the same age and both love to talk...=)

Noah and Santi

(this week)

Santi's First Church Service...

2008-09-11T08:23:00.006-04:00

Santi was so excited to "Go to church". Everyone who knows Santi will recognize his excitement...Going to church is santi's favorite thing to do!

Last night, our parents excitedly told Santi that this would be the day he would be able to go to church! Santi has long awaited those words! Santi has two particular days he likes best...Sunday and Wednesday. So far, he has waved everyone off to church with a'few sniffles and tears for (3) Sunday's and (4) Wednesday night church services.

For the last few days we have been able to participate in a series of services held in Plant City Florida.

The first night, seven of us Huron children sang. These are a little girl's sermon notes from the evening...

Peter, Santi and Olivia

Treasure, Santi, Cilicia and Peter.

"Sweet Pete" and Santi

Paul, Olivia and Treasure

Benuel and Treasure

Cilicia and Paul

North and South

2008-09-10T12:45:00.004-04:00

When Uncle Benny and Aunt Treasure say they are coming,...we know we're in for a fun day. Out comes the grill, and in go the baked beans. Uncle and Aunt are always there for us. They always check up on us when Santi is in the hospital and are always there to have a coming home party with! Since they live south of us, they are know as, "Huron Clan South". When North and South meet, you're in for some sweet fellowship.

Mmmm....

Jon-Michael helping out...

Santi and Ann, our sweet cousin...

Peter ready to eat!

Happy Birthday, Aunt Treasure!

Samuel found someone to read to him...

Titus Sweets...

Lovey...

Cooking funnel cake & pretzels...

Just warm out of the oven...hmmm...

SANTI IS AWESOME!

2008-09-10T10:52:00.009-04:00

Well, Santi had his first doctor's appointment after having surgery! After having x-rays and talking with Dr.Woo, we got the news that Santi is doing GREAT! We are so excited! I think, according to one of the doctors, he is "awesome". =) What an answer to prayer.

Just as a fair warning, I am posting a picture of Santi getting his staples out. For us, this picture is encouraging as this is what we prayed for! If you decide to skip this picture and not look further, you miss out on some other great pictures....

After seeing the new x-ray of Santi's back, Dr. Woo noticed that Santi doesn't have a hiatal hernia anymore! Santi has struggled with this hernia for many years, and what a blessing for it to "go away" after surgery. We knew this would be a possibility with his back straightened again, and his organs having a proper place to be. A hiatal hernia can be very uncomfortable as part of your stomach is herniated into your esophagus, causing extreme acid reflux. Santi can now eat pizza and spaghetti! This is just another wonderful blessing.

Many of you are faithful to pray for Santi's weight gain. Even though the scale dipped, and showed a pound less, Dr. Woo was still very happy. In most cases, children lose from 5--10 pounds after such a major surgery. Even in this, we are blessed!

Santi all ready to go...

Dr. Hanff taking the staples out...

Mom and Santi holding hands down the hall...

Ms. Teri Emma, a most wonderful friend

and advocate at Shands...

We thank the Lord for Dr. Woo!

Thank you for continuing to keep our family in prayer,

Anita

Count Your Many Blessings

2008-09-04T11:57:00.009-04:00

“The effectual fervent prayer of a righteous man availeth much.”
James 5:16b

Over the last couple of weeks, the Lord has poured his blessings on our family. It is easy to go from day to day thinking of God’s faithfulness and how good He is, but for those of you who live half way across the world or who live in the next state and have diligently prayed for Santi and our family, you may not know how your prayers have been answered! I don’t think there is a day that our father doesn’t ask all of us children to name just one way the Lord has blessed us or encouraged us, and I thought I would share some of those blessings with you…

While Santi was still waiting for surgery, he had a g-tube placed for extra nutrients before and after surgery. Our family was willing to walk this milk feeding road as we had walked this road earlier in Santi’s life. This posed a problem though…we had given our pump away to another family we had heard about a few years prior. Pumps are quite costly, even to rent, so we made this a matter of prayer. Within a week, a family heard of this need and blessed us with an “extra” pump they had…for free! Count your many blessings…

While we were trying to balance Santi’s “real meals” with the feedings, we were reminded once again how expensive PediaSure or Boost can be. With 3-4 cans a day, one can easily use up to 28 cans a week! We never complained about this as we saw this as meeting a need in Santi’s body…we just asked the Lord to make every drop add calories! About a week before surgery, a couple heard of Santi being on a pump, and donated six CASES of PediaSure to our family! Count your many blessings…

It was our prayer that our parents would be able to stay at the Ronald McDonald House during their extended Shands stay, and for those of you who have kept up with the blog know, the Lord saw fit to answer that prayer. It wouldn’t have changed God’s goodness to us if a hotel was His plan and desire for us, but He provided a place to rest only a quarter of a mile away from the hospital…let’s not pass over the extra blessings at R.M.H. like having a washer and dryer, refrigerator and caring people around you. Count your many blessings…

I guess Santi was thinking big thoughts when he stepped on the scale to be weighed because the weeks leading up to surgery, he gained a total of 3 pounds 2 ounces! What bigger thought than Jesus, right?! Count your many blessings…

Ms. Sandy, a precious woman who attends our church made herself available to us while our parents were away, as she is a nurse by occupation. We were so grateful, but at the same time I was hoping that we wouldn’t have any broken bones or incidents while our parents were away and “need” her. Come Wednesday, we noticed a few of the younger ones were coming down with colds…nothing to worry about. Wednesday night nearing midnight, one child was having difficulty and I felt uneasy with mom (who can fix anything, right?) being gone. After staying up ‘till 3:15am, we knew we needed to call Dad and Mom. After dialing my Dad’s cell 5 times, we couldn’t get through. We had been talking with our parents every day, multiple times a day, and had never had trouble getting through. This was strange. We called the hospital, they weren’t there, we called Ronald McDonald House, no one at the front desk, “please press extension number”…oops…didn’t have that number. “O Lord please help us”, was our prayer that night. Unbeknownst to us, Dad and Mom were sleeping with those loud hotel air conditioners in the background and Dad started having reflux (a rarity for him). Because of the discomfort it brought, he woke up and picked up his cell phone to see the time. As he was holding the phone, it vibrated and he saw that Josh was calling (the 8th time now). It was now 3:29am. With Dad and Mom on their way home, it would still be two hours, so another couple from church drove the 10 minutes to our home came right in with monitors and most importantly, comfort for the situation. Ms. Sandy came, pronounced the patient out of harms way, all before 6am. We were sorry Dad had to have reflux…but God sure answers prayer in mysterious ways! The Lord was watching over us! Count your many blessings…

Santi had wonderful understanding nurses. Count your many blessings…

After losing feeling in his legs three times during surgery, Santi can walk, talk…especially talk!...and eat by himself. Count your many blessings…

We didn’t need an ambulance to drive Santi home after surgery! Count your many blessings…

This post would not be complete if I did not mention the sheer army of people that prayed for Santi and our family. There are so many of you that prayed for us that we have never met personally, but are sisters and brothers through Christ. Thank you! I pray you see the Lord’s power through your diligent and heartfelt prayers through this post. Some, we heard, set alarms so they could pray every 30 minutes the day Santi had surgery, and others that had their little ones pray before every meal and bedtime. What a blessing! The outpouring of love has been overwhelming.

There are so many blessings…from food on the table, to family coming safely home in the evenings, to experiencing hard times together…

We are not different from many of you out there. Jesus Christ is the same yesterday and today, for me and you….He is not partial to one family over another. “Jesus Christ, the same yesterday, and today, and forever.” Heb. 14:8 Just as He moves in our family, He works and moves in yours. Take the time to think on His blessings and thank Him for His goodness and mercy. We all have something to be grateful for…

“I am He that liveth, and was dead; and behold, I am alive for evermore!”
Rev. 1:18

Count your many blessings!

Anita

Watch Santi's Homecoming!

2008-08-28T11:02:00.005-04:00

When Santi came home three days ago, our sweet friends who own IVLMedia, called and asked if they could run over and film Santi coming home. =) With just five minutes to spare,they had their cameras set up and were able to catch Dad and Mom pulling in the drive way! The Ivies, posted this clip on their blog and said we could share with you as well!

Thank you Ivie family! What a wonderful memory of God's goodness and faithfulness...

Let the Celebration Begin!

2008-08-25T14:43:00.007-04:00

Dad and Mom...we thank the Lord for you!

This morning Santi's discharge papers were signed!

Santi is HOME!

All worked hard to get the house ready. Besides the usual cleaning for a hospital man, everyone wanted to have a hand in making the living room, santi's room for the present, as cheerful as possible! With a big poster stretched across the fireplace and a bed with bright pillows, we know Santi was happy and pleased. He walked into the house, (very slowly of course) and enjoyed all the bright colors and all the fuss!

Thank you to all that prayed, called and left comments for Santi during his stay at Shands. It has been such a blessing, and we ask that you would continue to keep him, and our family, in your prayers as we are on this road to recovery.

Santi on the phone telling us his good news

Dr. Hanff with Santi before he was discharged

Ready to Go!

Everyone colored scripture verses so Santi can read them while in bed.

Everyone worked hard on this colorful, creative, big and full of love, poster.

Santi happily talking from his bed in the living room.

Some paper flowers Cilicia, Olivia and Treasure made for some extra party cheer!

The Shuffle of Brothers and Sisters

2008-08-24T21:19:00.003-04:00

We did another "shift change" yesterday, and Olivia and I came home with Josh and Cilicia, who brought Mom back to Shands for the weekend. I write this, not to brag or sound stuffy, but Santi really loves all of us brothers and sisters and to see a couple of new faces is just like having ice cream. We can't wait 'till we can all be together again!

With Santi being away, everything changes....even grocery shopping. We would go down the isle and reach to get an extra box of cream cheese or granola bars and then think, oh yah...we're not cooking for him this week! All of us children work together and help one another with what has to be done in a day, and it's amazing what kind of routine one can get into over time and how you will have little, "glitches" or "oh, yah" moment, when one person is gone!

Santi is definitely apart of us, and us him. Some people ask, "doesn't someone get lost in the shuffle of a big family?" How can they, when so many are around?! Just a little food for thought...=)

Anita

Starbursts!

Santi and Josh playing around...!

There's nothing like spending a few days

together in the hospital...

Santi loves his sisters!

The Blustery Day!

2008-08-22T18:08:00.005-04:00

"And He took him by the right hand, and lifted him up: and immediately his feet and ankle bones received strength. And he leaping up stood, and walked, and entered with them into the temple, walking, and leaping, and praising God. And all the people saw him walking and praising God." -Acts 3:7-8

We are so excited about Santi walking today! We posted quite a few pictures of him...we're just so proud of him! Here is a portion of a letter Anita sent home today...

"Besides the storm raging outside the hospital walls, the biggest news is that Daddy took a nap! =) Olivia and I were Santi's little nurses for at least 4 hours. We drank coffee...not half as good as home.....watched Winnie the Pooh (The Blustery Day =) and ate blueberry muffins. I asked for some no-rinse shampoo and "washed" Santi's hair. That was interesting! Santi was all worried about getting the soap on his pillow, but we finally convinced him that a good smelling head was more important. =)

Santi was so excited about walking. He actually went around the hospital loop two times today (different times). His therapist, a really kind man, was totally floored that he had walked so much. I showed him the video clip to prove it.....he was pretty impressed. Everyone is saying that Monday is probably THE DAY.....I hope so. Well, must get back downstairs as Daddy is waiting for us."

Anita from Shands

Day 4- Post-Op

2008-08-22T12:50:00.006-04:00

Where the Air is Still

We are now at Day 4 post-op and Santi continues to do well! Storm Fay is still battering the area, but everyone is safe. Santi took some steps today with a walker! We are thrilled with his progress….again, the prayers of the saints have borne him up and for this, we are thankful and grateful….

I am re-reading a favorite book called “Climbing” by Rosalind Goforth. If you have never read the Goforth’s story, I urge you to obtain a copy and read it. Mrs. Goforth has written her thoughts in “Climbing” and also in “How I Know God Answers Prayer”. Here is a portion of a poem she includes in the book:

“Call back, and tell that He went with you into the storm;
Call back and say He kept you when the forest’s roots were torn;
That when the heavens thundered and the earthquake shook the hill,
He bore you up and held you where the very air was still.” -Author Unknown

Have you even been where the very air was still? God’s grace carries us there. Today we heard the news of a Christian family who lost their 15 year old son, Kyle, when he was struck by a vehicle while on his bicycle. His brain was damaged severely and he eventually died, but not before his organs went out to four others! His heart will go to a young girl who desperately needed a heart transplant. This is all we know, but I would like to ask you to pray for the family who is deep in grief.

If Santi continues to do well with his walking practice, the doctors may release him to come home on Monday! Please pray for the health of some of the children here at home; we wouldn’t want Santi to contract a cold at all.

Much love to all,
Ana

Fay from a Window

2008-08-21T19:53:00.006-04:00

Tropical Storm Fay as it passes over Florida

Anita sent us this picture of weather resulting from the storm, Fay as it's passing over Gainsville.

Santi Has Visitors!

2008-08-21T18:55:00.004-04:00

Today Santi enjoyed a visit from Jeremy, Joshua, and Jo-hanna along with their mother, Mrs. Ginger Schmidt. Thank you for helping make Santi's stay in the hospital a cheerful one!

A time of prayer...

A Phone Call for Santi

2008-08-21T14:36:00.003-04:00

Last night we were on our way, driving to Wednesday night church when we received a call from a little boy at Shands! He had a request...Santi, knowing we were going to church and wanting to be there, called and asked if we could sing his favorite song, even though he wouldn't be there to sing it.

Later on when the hymn, "Victory in Jesus" was turned to, Olivia slipped out of the pew to make a phone call...this was Santi's hymn! As we sang the last note, a small voice could be heard, excited to know that he could join us for his song after all. One little boy's night was made special...yup, a phone call for Santi!

Daddy holding the phone for Santi, while Mom grabbed the camera.

Thank you for all the prayer that is going up to the Lord for little Santi! He may still look swollen and not "Santi-ish" but really, we are so encouraged to know how well he's doing.

"I heard about his healing, of His cleansing power revealing, how He made the lame to walk again and caused the blind to see; and then I cried, "Dear Jesus, come and heal my broken spirit," And somehow Jesus came and brought to me the victory.

O victory in Jesus, my Savior, forever! He sought me and bought with His redeeming blood; He loved me ere I knew Him, and all my love is due Him. He plunged me to victory beneath the cleansing flood." -Victory In Jesus

The Early Switch- Day 3

2008-08-21T13:37:00.005-04:00

An early morning visit from Santi's three doctors and nurse

Good Afternoon!

This morning Mom and Daddy came home, and Anita and Olivia joined Daddy for an early surprise for Santi! Anita wrote a letter home from the hospital, so here is a little excerpt...

"Olivia and I are here in the Ronald McDonald room. Santi is doing fine, just a little tired as he didn't have a good nights sleep. He already sat up this morning to eat a little breakfast, but is now sleeping before they come to do an x-ray of him sitting up.

Daddy went in his room this morning and said he had a surprise for him....you know how Santi is about surprises! =) Then, Olivia and I came around the corner. =) It was fun.

Antia and Santi

Olivia and Santi

Santi is definitely feeling sore today, but he's so good about sitting up when he's supposed to. I know it's hard for him."

Treasure also talked with Santi this morning, and was in an animated conversation with him about...pancakes and sausage...that's Santi!

Day 2- Big and Tall

2008-08-20T22:10:00.005-04:00

Daddy and Santi practicing standing.

Ben Maxson and Matt Schmidt visiting from work with lots of presents! Thank you Schmidts, Maxsons, and Maynards!

Will we have to start buying in the Big and Tall department for Santi? Hope so.....Santi is sporting a loooonnnngg 16 inch incision and the bandage came completely off today.

Santi also stood today briefly and had many probes and catheters removed....that's always a good thing! The real day-brightener came when Santi received a visit from Matt Schmidt and Ben Maxson...they brought special presents from their families and OH how he enjoyed each and every item. Thank you so much! It is the end of a very good and very eventful day. Many comments from the doctors and nurses indicate that Santi is progressing at a faster pace than expected....we truly credit the prayers of God's people for that.

With much love to all,

Ana from Shands

Dr. Hanff removing the epidural catheter!

Our sweet Nurse Pam. She's been terrific!

Now unto Him that is able to keep you from falling, and to present you faultless before the presence of his glory with exceeding joy, To the only wise God our Saviour, be glory and magesty, dominioun and power, both now and ever. Amen. Jude 15:24-25

Therapy With Daddy

2008-08-20T11:38:00.004-04:00

Therapy with Daddy Day 2

Post-operative is going very well so far! Santiago and I are continuing to have good nights of restful sleep. Santi is doing pretty much the same as yesterday. He's sleeping a lot due to the medications for pain and the whole recovery process.

Yesterday, Santi had a therapy session in which he gets in a special chair to attempt to sit up. He sat in a semi-recline for about one hour. Santiago got very involved in the whole process as you can see...."Oh, we don't get many Daddies who get this involved with our therapy sessions!"

Santi had some solid breakfast this morning, too! Hurray....eggs, biscuit, and lots of juice.

Love to all....Ana

Singing in the Morning

2008-08-20T08:08:00.009-04:00

"My voice shalt thou hear in the morning, O Lord; in the morning will I direct my prayer unto thee, and will look up."

Good Morning!

This morning we all gathered in one of the bedrooms and had a group talk with Santi! He wanted to talk with everyone of us...even insisted on talking with Peter who was still sleeping. At one moment in the conversation Santi asked us to sing a song...we agreed to sing, "What do you want us to sing Santi?"...his confident answer was, "Victory in Jesus!" We all tried clearing our morning voices, and surly tried our best!

Santi had a good night last night. Mama and Daddy look forward to Santi having a better day today. Yesterday they ended up moving him again to a different floor with more care.

We will try getting some pictures from mama when she can find some time to get away!

Thank you for praying for Santi,

-The Huron Children

Got Jello?

2008-08-19T18:30:00.002-04:00

This is a quick post letting all of you know Santi ate Jello this afternoon! For some, this may seem small, but this is so encouraging for us! Santi has been soo sleepy today, so for him to wake up and eat TWO Jello cups...that was huge.

Also, Santi is now out of the intensive care. He is on the 4th floor. He had to sit up for an hour today, and that was hard on him. He is very sore and being moved (no walking) is painful. The main reason the Dr.'s wanted him to sit up, was to help his lungs. Please pray for him during this time! He is a trooper, but he still needs comfort and strength.

We can't thank you enough for the support and prayers that have gone up on our behalf these last few days. Many of you have posted Santi on your blog so that others could pray...this is so thoughtful and a true blessing.

Anita

Meekness is not Weakness

2008-08-19T11:16:00.005-04:00

Dear Friends and Family,

I thought I'd post a journal of sorts to give you an idea of life here at Shands PICU (Pediatric Intentsive Care Unit).

Day 1 Meekness is Not Weakness

A lexicon I consulted recently defined "meekness" as "gentle strength". That sure is a lot to think about. As I meditated on that further, I thought about Jesus as he faced the throng just after leaving his prayer time in the garden. It was happening...the beginning of the end. He could have called in a huge force of angels to deliver Him. It could have been over in an instant. But Jesus knew that the events about to happen needed to happen that scripture would be fulfilled. For Jesus to KNOW His place and Who He was (Almighty God) and yet walk through a very dark place for you and me is meekness. Not weakness.

The PICU at Shands can be a dark place, both physically and spiritually. The cries of children can be heard in the halls, little ones with no hair shuffle around with their "chemo poles", parents give verbal run downs of "meds" their child takes, equipment sounds alarms of varying degrees and volume, nurses talk in "nurse-ese": meds, peds, stats, pulse-ox, vitals......foreign language that quickly becomes a parent's language as well. We learn to speak this fluently and learn to listen carefully for more. Alertness is necessary. This morning is Santi's first day post-op. He is doing great! He spoke to his nice nurse, Callie, last night in the dark after asking about Mama and Daddy. Callie explained that Mama and Daddy needed to get some sleep. He completely understood after he asked the time. Santi is very time conscious and so when Callie replied "3:30. Are you allowed to stay up this late, Santi?" He replied, "Oh, no, ma'am!!" His spine is amazingly straight. I'll try to get a picture of it soon. He is swollen from the anesthesia as you can see, but that should soon subside. He is on pain medication and moving hurts...understandably so. I help the nurse move him from side to side periodically. He doesn't like to move, but he must and in about 30 minutes, Santi will be required to attempt a sit in a chair! I can't imagine....this is meekness...gentle strength. His color is good, he's talking and saying he's hungry! Doctors are OK with that and may give him some food this afternoon along with a move from ICU to the regular floor. Wow. Thank you all for praying for our boy. He's a toughie.

More on Day 1 a little later.............. Ana

Mama with Santi

Mr Fordham with Santi

Heather talking to Santi

Santi with Heather and Mrs. Fordham

Twins Cami and Emma with Santi

Santi out of Surgery!

2008-08-18T22:25:00.003-04:00

It is now 10:53 and Santi is out of surgery!

Mom and Daddy were able to see him a few minutes ago. Santi was very swollen and groggy but was asking for them the moment he woke up. His first words to Daddy were, "I got my halo off!".

The Lord truly answered the prayers of those of you who were praying for the doctors hands these last few hours. Our parents were saying that at one point the doctors were almost done, stitching the last stitches when the nerve team was alerted that Santi had lost feeling in his legs. Dr. Woo had to quickly take the stitches out to reach the spinal cord...this happened three times. God is good and at this point Santi is doing great and doctors will of course be monitoring him closely.

For the next seven months Santi will have to be careful, in particular to a small section on his spine where the spinal cord will be extra sensitive to pressure.

Santi is 50% straighter. Mom said it looked to her to be more like 80% straighter! Dr. Woo is very pleased with the outcome.

Santi did have to have two units of blood, but the second was more of a precautionary measure than a needed one. We are so thankful!

Mom and Daddy are really tired tonight, really happy and pleased, but tired. Pray that they will get much needed sleep.

We will Lord willing be able to give an update tomorrow of how Santi is doing.

Thank you for praying.

Still Waiting...

2008-08-18T20:41:00.004-04:00

Daddy called a few minutes ago and the news is, "still waiting..." Hours have ticked by and I guess as the time comes closer to the end, we all get jittery and anxious...

Here's a verse from Psalm we find comforting...
"As for God, His way is perfect: the word of the Lord is tried: He is a buckler to all those that trust in Him." Psalm 18:30

God is good. Keep praying!
Cilicia for all the Hurons

Praise Report

2008-08-18T19:27:00.002-04:00

When mom called a few hours ago, she mentioned that Santi has only needed one unit of blood so far. Last surgery, he needed two. This is such good news!

Thank you for praying...I know the Lord is answering prayer.

Anita

2008-08-18T19:19:00.002-04:00

Hello everyone...

We have had tech difficulties here at home, and have just been able to get the internet back up and running.

Thanks to all of you that have called and e-mailed letting us know you are praying!

Santi is well, and still in surgery. It is 7:21pm now, and we are eagerly awaiting a call from our parents.

Mom has been e-mailing us off and on today, and we thought we'd share a little from her letters.

"Doug, the RN, finally called about 30 minutes ago, (my stomach was in knots) and told us that Santi's vital signs are great, he's holding up really well. The screws are all in place and now they are in the process of applying the Nova Bone and beginning the fusion process. The very last thing they will do will be to remove the halo. They decided to keep it in place during the surgery to keep his head stable...very good idea!

I get the idea that everything is going well, but slowly. This morning Dr. Woo anticipated a shorter than 13 hour surgery....he really had hoped to be done by 3:00, but I see that now, that will not happen. I almost wish he had not said ANYTHING about his hopes, then MY hopes would not be disturbed. As I write that, I am convicted that my hope needs to be completely in Him and not in the doctor's words. I need to give them BACK the full 13 hours that was originally in place. The nerve team may be taking their time with Santi, which we understood to be very important. They have to slow things down for the nerves so...... Doug mentioned maybe 5 more hours, which would be about 7:00, but as I just said.......trust in the Lord.

This is why I didn't want anything said about the shorter time.......

Daddy is making popcorn and the volunteer just made a fresh pot of coffee. Can you smell this?? Oh yuck."

Will keep you posted,
Anita

Santi's Angel

2008-08-18T11:42:00.004-04:00

Santi yesterday afternoon

Behold, I send an angel before thee, to keep thee in the way, and to bring thee into the place which I have prepared. Exodus 23:20

Thank you all so much for praying....today is the day we've been waiting for. My friend Ginger called me the other day with this special verse. Isn't it amazing? The three of us had a very good night's sleep at the Ronald McDonald House and we were very blessed to have been able to get in there...there was one vacancy! We were at the surgery dock at 6:00am sharp and Santi was called right in. Dr. Hanff and Dr. Woo came to see him as well as many others...Santi is the star of the orthopedic day...... We are thankful for Santi's good and calm spirit...very sweet. He was rubbing my back while we were in the waiting dock...what a sweet boy. Prep time took quite a while, but Doug, Santi's veteran nurse, called me here in the waiting area and told me that the incision was made at 10:10 am. Please continue to pray for the hands of all the doctors and nurses; the orthopedic team, the nerve team, and the anesthesiologist team. Santi's Angel is there before him, in the way God has prepared....we cannot ask for more than that! Stay with us for more updates as I get them...... Ana

Jesus is the Light

2008-08-17T23:43:00.003-04:00

The big day is almost here. Santi is scheduled to have surgery tomorrow morning. He has to check in at 6am, although surgery will probably be a couple of hours later. Please pray for Santi and our whole family as we wait the 13 hour surgery process.

The Lord answered prayer, and my parents were able to secure a room at the Ronald McDonald House in Gainesville today! So many things had to be approved for this stay, and we are so grateful that a room was open, and that Santi's case qualified my parents a place to rest over the next 10 days or so. We didn't know until today if the Ronald McDonald House was going to go through, so what a blessing this was! My parents only have to travel about one mile by trolley to Shands.

Ronald McDonald House if full of parents caring for their needy children at Shands. Mom said that staying their has a way of putting things into perspective, because she always meets someone that seems to have it harder or more challenging than our family.

http://www.rmhgainesville.org

Again, please pray as tomorrow is such a monumental day for Santi and our family. As goodbye's were being said and hugs given all around this evening, we asked Santi, "What's the word?!" and he said, "Jesus is the Light!". This is Santi's motto...may it be for the rest of us as well.

We will try to keep you posted as the day progresses...

Good Night.

Don't forget, "Jesus is the Light"!

Anita

Happy Birthday Cilicia and Alexis!

2008-08-14T17:20:00.009-04:00

Happy Birthday Cilicia and Alexis!!

Today Santi had his last doctors appointment before surgery on Monday. We're all very excited to know how well Santi has done these last few weeks of traction. We're all gearing up for the big day! Santi was up bright and early...but not too early to make sure we didn't start partying without him!!

Happy Birthday Cilicia!

Happy Birthday Alexis!

And Whatsoever We Ask

2008-08-05T22:15:00.005-04:00

“And whatsoever we ask, we receive of him, because we keep his commandments, and do those things that are pleasing in his sight.”
I John 4:22

Today, Santi, his Daddy and I went to Gainesville for yet another of our weekly visits with Dr. Woo. It was a very good day. The sunshine, the fluffy white clouds, time to talk and pray….all blessings not to be taken for granted. I never consciously asked for these things, and yet God chose to give them to us……
Santi has gained yet another ounce and has been steadily gaining centimeters in height! We are so thankful! Dr. Woo is very pleased with the stretching and lengthening happening in Santi’s spine, which is proof that the traction is working. We met Dr. Mercado today…she is a resident shadowing Dr. Woo today and is pictured here with Santi.

It was interesting to hear Dr. Woo “test” her on what he was doing. We also chatted with James, a cast tech, who made us feel at ease with his fun personality and relaxing way with Santi.

We are consistent with Santi’s traction even when I “feel” like giving him a break out of his chair. The only times Santi is out of his wheelchair is to bathe and go to the bathroom; he is out of it during the night for sleep, but we put the weights on his halo even during his sleep. He is carrying 22 pounds now….can you imagine? He hasn’t complained or wished it could be over….I am not exaggerating this at all.
We are now counting down the days until surgery…..13 more days. Dr. Woo says he is mentally preparing himself for the big day. I’m sure I cannot even begin to understand what is in his mind, but we pray that God will give him wisdom in all his thoughts and that He will guide his hands during the 13 hour procedure.

I believe that gratefulness and the giving of thanks is pleasing to the Lord. May we continue to do just that……………
Love to all,
Ana

Happy Birthday, Samuel!

2008-08-04T17:06:00.003-04:00

Our little Samuel is three today!

Samuel requested chocolate cake,

chocolate icing and chocolate ice cream. One sister

couldn't resist adding a few more colors

when she found this little hut and tree at a

local store in town. =)

Samuel all excited about Santi's gift...a bug kit, complete with bug net!

Can't go with out Santi's song!

Happy Birthday, Treasure!

2008-07-30T16:44:00.006-04:00

Our sweet Treasure...

Happy Birthday!

Sixteen Pounds

2008-07-24T16:37:00.009-04:00

Today Santi had his routine checkup at Shands and as always met new people...Santi thinks that's the best part!

Today Santi is at the sixteen pound mark that we were all aiming for, and Santi's doctors are really excited at his excellent progress. In just this past week he has straightened in his top curvature 10 degrees! Wow, that's a big plus for Santi. Dr. Woo wants him to continue with the weights as he's doing so well. We will be adding one pound every other day and doctors will be supervising him with weekly x-rays and checkups.

X-ray on the left is from today, and the one on the right taken last week

Here in this picture Santi is with Loren, a high school student shadowing Dr. Woo. Dr Woo is on Santi's left.

Today Santi met Dr. Chris Bugnitz

Santi with X-ray technician Mindy

Keep Santi in your prayers. Dr. Woo told us that after the ten pound mark, Santi would encounter the harder part of halo traction.

Art Lessons, Perhaps?

2008-07-19T21:23:00.003-04:00

Little Artist: "Mom, this is for you!"

Mom: "Oh! Nice! And who is this?"

Little Artist: "It's you, Mom!"

We will keep the little artist's name hidden for now, but we told Mom to look on the bright side, she does look a little unhinged, but at least her portrait is smiling!

The Miracle of Normalcy

2008-07-15T11:45:00.001-04:00

There is a degree of life called NORMAL. The degree intensifies or recedes as time passes; the length of time passed also varies. “Normal” differs for each of us….what is normal for me may be abnormal for you, and yet, God created us in His image. We all have the same basic needs, but when we feel we should have more of a basic need because of selfishness, or fear, or greed, or lust, our lives become…..abnormal. Jesus said that His grace was sufficient so I’m beginning to realize that having the mind of Christ is normal.

When something “out-of- the-ordinary” happens, I become fearful just like the disciples in the boat during their trip. Jesus said they were going across, but when the tempest rose up, everyone became intensely afraid and doubted the truth…..this was just not normal. And Jesus was asleep! Now sleeping sounds very normal to me.

Sleeping during a tempest is normal…..fearing during a tempest is not.

They forgot the verse in Psalm 118: 6: “The Lord is on my side; I will not fear: what can man do unto me?” and the one is Proverbs 3: 24: “When thou liest down, thou shalt not be afraid: yea, thou shalt lie down and thy sleep shall be sweet.”

Normalcy becomes a miracle!

Pictures from this Week

2008-07-13T18:39:00.007-04:00

Today Santi was so excited to go to church! He has been to the park down the road from our house and besides the short walks down our front side walk, this was his first outing.

Luke and Santi at the park Cilicia, Santi and Mr. Balogh
Ms. Sandy and Mr. Richard with Santi at church today

Santi with Steven at church

Good Day!

2008-07-08T19:38:00.008-04:00

Today was Santi’s one week follow-up appointment and it was a good day! Santi was nervous and wouldn’t smile for me in the waiting room, which is very unusual, but considering what he’s been through, we do understand. He relaxed with x-rays as this is something familiar…..
The great news is that the x-rays showed an improvement in the curvature already! One curve that measured 99.8 degrees now measures 93.7 after only one week of traction. I thought it was pretty amazing and Dr. Hanff was also very pleased. Dr. Hanff is pictured below with Santi after a brief talk with us…he is assisting Dr. Woo on this case and we like him very much…….

Dr. Stephen Hanff and Santi

A surprise addition to our good day was being able to see an old friend….Gary. We grabbed a picture with him also after we needed to pick up a five-pound weight at the hospital. Gary constructed Santi’s Risser cast several years ago. We became immediate friends and he, one of Santi’s favorite people at Shands.

Santi and Mr. Gary (Cast Technician)

God is answering many prayers for Santi. Thank you for joining us!
~Ana~

Dwelling in Heaven

2008-07-07T18:07:00.004-04:00

I recently studied patience. I even spoke about it in a talk to ladies at a Family Life Conference. I probably sounded very knowledgeable about it and maybe as if I was a very patient person….like I had it all together in the patience department. Shortly after that conference, I was tested and failed the test of patience.

The 3 main things I learned about patience were:

Jesus loves me enough to allow the trial.

The darker the trial, the brighter the testimony, and

Hope is a key to understanding patience.

Hope……
Not “Oh, I hope this doesn’t last long.”
Not “Oh, I hope I’ll get married after all.”
Not “Oh, I hope this doesn’t leave a scar.”
Not, “Oh, I hope we don’t go bankrupt.”
Not, “Oh, I hope I’m completely healed.”
Not, “Oh, I hope I have a baby.”

Our hope is in heaven! Our hope is in the Lord! Our hope is eternal, not temporal….no matter what the physical outcome of the trial is, our hope is in heaven!

Santi is a picture of hopeful patience to me. I thought about how I would handle his situation: seven screws in my head and having to rely on the help of others just to go the bathroom….sitting all day long in one chair…..sleeping all night long without the luxury of turning over. Oh my.

Santi doesn’t talk about heaven, but he dwells there……………

Mom

Looking Back...

2008-07-07T16:40:00.008-04:00

As Cilicia said, one week ago our family was facing two family surgeries. Since we didn't post any pictures of Santi coming home, we thought we would post now in celebration...one week later!

There he is!

Daddy and Santi

Mom and Santi sharing a good laugh...

Our wonderful parents who love

us to the moon and back...

Out you go!

Santi, more than ready to go!

Mom...

Samuel likes the halo!

Parade procession up to the house...

(Notice the "welcome home" drawings and doodles of little hands

on the sidewalk? Our whole driveway was covered in chalk! =)

And into the house!

Hugs for everyone...

Jon-Michael...

Laughing all together again...

Home, the best place to be!

Scripture on an Envelope

2008-07-07T16:04:00.000-04:00

Today marks a week to the day that Santi and I went up to Shands to have surgery. Both of us are so thankful to all who prayed, and continue to pray for us. God is good and we’re both doing really great! As I write, Santi is singing at the top of his lungs, filling the house with a cheerful tune…what a blessing and a joy to all of us, knowing that it’s not a painless task to now have eight pounds of weight hooked to his wheelchair. God is certainly answering your prayers, God is giving Santi the power and the grace to go through this tough time in his young life.

Tomorrow Santi will be going up to Shands for a follow-up appointment. X-rays of Santi with the weights hooked up will give the doctors clear direction of where Santi is and where he should be.

Again thank you for all the encouragement to our whole family, God has used all the cards and scriptures as a true source of encouragement. Last Monday as we were sitting, waiting to hear about Santi and about an hour before my own surgery, I began to feel uncertain….fearful. At this time I remembered that I had tucked away a little envelope from a little friend from church. Some verses of scripture were written on that envelope. Reaching into my backpack, I found… “For God hath not given you (me) a mind of fear…”. I’m so thankful to the Lord for using scripture on an envelope!

Happy Birthday

2008-07-04T10:25:00.004-04:00

Listen to Santi sing happy birthday to his sister, Olivia!

Happy Bithday, Olivia!

Kristine and McKenzie

2008-07-03T17:51:00.003-04:00

One of Santi's sweet nurses, Kristine.

Santi and Dr. McKenzie...his first day

as a resident at Shands.

This nurse and Dr. helped Santi with his new

wheelchair and adding weights to the halo.

Here is Santi's new wheelchair! You can also see the weights that are attached to his halo. Every other day we add one more pound, until we reach 16 pounds.

Everyone that came in Santi's room was such a cheerleader, always positive always cheerful. We are so grateful for the Kristine's and McKenzie's out there.

My Sister

2008-07-03T08:23:00.004-04:00

Cilicia and Santi seeing each other for

the first time in two days

Cilicia and Dad just before leaving the hospital

When Cilicia came home, I left the camera with Dad and Santi, so we are just now able to post more pictures!

Some have asked about Cilicia. Cilicia is doing well, she just wasn't so picture happy as Santi after surgery. =) She was smiling for a few reasons in these pictures..one, she had just had morphine, and two, she was going home!

We are so glad she is home. It just isn't the same without her!

Welcome home, my sister, my friend...

Confounding the Mighty

2008-07-02T18:13:00.002-04:00

Anita has done such a marvelous job of blogging and keeping all of our dear family and friends updated on happenings here at the Hurons! I am giving her a much deserved break today and will attempt to relate the latest so that you may share our hearts and view of this side of Heaven…….

What a joy it was to bring Santi home this morning! When Anita and I arrived in the van, he and Daddy were waiting outside of the front doors. We loaded the van with a futon, a nice fluffy feather mattress and piles of pillows. I had a feeling Santi wanted to ride up front instead of lying down and I was right. He relished the outdoors, but began nodding after a while. He was able to lie down and had a good nap for the remainder of the ride home.

He seems to require so little pain medication…..it makes me think of the verse in I Corinthians one….verse 27: “For God hath chosen the foolish things of the world to confound the wise; and God hath chosen the weak things of the world to confound the things which are mighty….that no flesh should glory in his presence.”

Santi is confounding! His strength comes from his weakness….and God has chosen him to remind us (the mighty ones?) that bravery and health and intelligence and…..(you fill in your “good” thing) is really nothing.

I accidentally bumped his halo as we were transferring him to the bed and he quietly said, “Ow”. I felt so terrible. The first thing he wanted to do when we wheeled him into the house was ride around and visit Cilicia in her room. After his visit, we realized we were late on his next med dose. He didn’t want to take any, but we knew we had better keep the schedule……confounding…..

Now for some technical talk: Santi’s halo is attached to his skull with 7 screws….quite large ones. They make me squeamish. This morning just before discharge from the hospital, a doctor had to “torque” them all. This made my husband squeamish. When Santi is seated in the wheelchair, weights are attached to a pulley running from the top of the halo down behind the chair. He is now pulling 6 pounds; we are to add one pound every other day until we reach the maximum pull of 16 pounds! Try sitting up with 3 bags of sugar plus one pound pulling off the top of your head….it hurts…..

Now we must take Santi back to Shands once per week for x-rays of his neck to make sure the traction is adequate….that is, not too little and not too strong. We are very thankful for the wheelchair and that he is actually able to go to church and other selective outings…..we are being especially careful just now to protect him and the rest of us from an apparent flu bug. We will be home-bodies for a while…..

Again, thank you for praying for Santi and for your notes of love. He really loves hearing the blog comments. He is able to be wheeled up to a computer and play with the word processor….he loves to spell the names of our family members. After this week, I will resume his phonics lessons and continue with as much normalcy as we can.

Cilicia is doing well, though moving slowly. Nausea is still a problem and so she is not her usual perky self. Continue to pray for her healing and physical nourishment. She turned down my yummy chicken soup! This reminds me to thank all of you for the meals coming to our house! What a blessing! The cooking staff around here has been delegated to round the clock nursing and so they appreciate the break…..

Are you mighty or weak? Are you base or despised We glory in the Lord!

Thoughts from Ana a.k.a. “Mama”

Home Again, Home Again...

2008-07-01T16:33:00.004-04:00

This morning began with great uncertainty as to whether Cilicia would be able to come home today, but she began to feel better after the nurses figured out what pain medications worked and brought the most relief. Again, we were blessed with great nurses, and they were so encouraging with the walking that had to be done before she could be discharged. I know it wasn't an easy morning for Cilicia, but she was strong and determined...she wanted to go home....and home she is!

When she was wheeled to the front of the hospital and Dad came to pick her up in the truck, a man passed that we had seen yesterday waiting like we were in the waiting room and hallways, and he gave us a, "Great! You get to go home" kind of send off before going back inside. It was another great, "be blessed" sort of going away.

Cilicia is resting and just so happy to be home. All the family was waiting in the driveway to greet us and see the "patient". What a happy time.

She still needs prayer for continued healing and strength as these next few days she will feel sore.

As happy as we are that Cilicia is home, we must remember Santi too. There were tears as he realized that Cilicia was going home without him, but then he perked up when Cilicia said she would call him on the phone tonight. Today has been a little difficult for Santi as his neck is very sore and he seems more uncomfortable with the halo. Please pray that Daddy and Santi will be safe and encouraged tonight as they spend another day at Shands. There aren't any promises, but he may be able to come home tomorrow....we shall see...

A New Morning

2008-07-01T10:25:00.007-04:00

Santi looking at a gift some Shands volunteers gave him

Santi and Anita

Shands
11:13 am

Cilicia and Santi and talking together on the phone right now. Maybe, once Santi get's to take a ride in his new wheelchair, he can go see Cilicia!

I'll post pictures later of his new wheelchair. For now he is resting as his neck is especially painful as it is being stretched. He is also on his back, which is very different for him as he felt more comfortable on his side, due to his back. Keep praying as everything is starting to feel sore. It's just another chapter in the Santi book. =)

Thanks for the comments that were left...I read them to Santi this morning and read them to Cilicia about 3 in the morning after a nurse had come in. You thoughts and prayers are a great encouragement to them.

I'm Hungry Too

2008-07-01T05:19:00.004-04:00

Picture of the day...

Yumm...

While in the waiting room yesterday, I saw this sign and had to take a picture. Cilicia and Santi couldn't eat all morning, so we didn't eat either. =)Even eating peanuts beside them made you feel horrible. Actually, we teased Cilicia that she was eating lunch before us as she was hooked up to an IV in pre-op. Anyway, Animal crackers couldn't have tasted better to Santi after surgery!

It was great seeing Santi have an appetite last night just after surgery. I don't think I mentioned that Santi also had a G-tube placed for feedings. The little button looks like the closure of a beach ball. Since he will be in intense traction, the Dr. thought it best to have extra calories going in his body and help in putting more weight before the next surgery as he may not have such a great appetite.

Visitors

2008-06-30T22:02:00.004-04:00

Pastor with Santi in recovery room

So, how's it going?

Was the gator really that big?!

Talking about that truck...

Praying

Shands

10:20 pm

Pastor Jeff Howell and his son Noah, dear friends of our from Plant City, came to visit Santi today. It was a surprise to us and Santi was definitely happy. Noah is just about Santi's age and was so talkative and cheerful that it really perked him up. Just before they left to go back home, Noah gave him a bright yellow dump truck to play with. Santi later put his animal crackers in the back of the truck and ate them one by one....he liked the truck, Noah! Not only did Noah entertain Santi with his fishing stories, but he talked with us girls in the hallways while we waited for one thing or another. He reminded us of our own little brother Jon-Michael. You were a blessing, Howell family!

We also had a special time of prayer with Pastor Harding this evening. It is so nice to have such encouragement around us. Thank you for visiting...

Cilicia

2008-06-30T20:59:00.004-04:00

Shands
9:49 pm

Alexis and I are sitting together in a nice quiet room on a single cot while Cilicia peacefully sleeps next to us in her hospital bed. Santi and Dad are downstairs on the 4th floor while we are on the 7th.

Well, this has definitely been a big day for Cilicia. She went into surgery at 1:15pm and didn't come out of the O.R. until 5:15. It seemed longer to us that were waiting for the call from the doctor, or nurse, to say she was finished or in recovery. Things did go longer than expected because of scar tissue that had formed around the kidney, but the Dr. was very pleased with the outcome. It wasn't very easy on Cilicia as she came out of surgery in a great deal of pain, but after having morphine and something to settle her stomach, she relaxed and went to sleep. We were able to talk with her a little, but she is very groggy and it was making her a little frustrated that she couldn't stay awake and know what we were talking about. It is so good to see her resting...peacefully. We can not thank you enough for all the prayer on her behalf!

An added blessing to Cilicia is that she has her own room at the end of the hall...no noise, peace and quiet, and a great nurse. You wouldn't believe the difference this is from all the other floors here at Shands!

It's such a comfort to be able to sit here with Alexis watching all the night lights from our Gainesville window, knowing that Cilicia is done with surgery, and Santi is safely through the first part of his surgery journey. God has been so faithful and merciful.

Besides us running the elevators floor to floor, we have nurses stop us and ask about, "the brother downstairs", and "the sister upstairs". The kindness has been overwhelming.

After Surgery

2008-06-30T18:15:00.006-04:00

Santi a little groggy after surgery

Dr. Woo and Santi just after surgery

These pictures show a very groggy Santi. He was actually very alert and talkative...very Santi like for those of you that know him...and wanted to talk to Ben and Treasure on the phone, who promised to call him at 12.

Dr. Woo is the Dr. that will be performing his back surgery in August. He is a very gracious man and we are so blessed to have him as our surgeon.

Pictures and Afternoon at Shands

2008-06-30T16:11:00.011-04:00

Walking up to the Entrance of Shands

Shands

Everything is o.k. with Daddy here!

Dad and Santi

Alexis and Santi

Dad in scrubs after going back with Santi

Santi with his sweet nurse, Brittany

Santi before surgery

Before surgery with Dad

Shands
4:10pm

I had planned on updating a lot more today, but things have been moving and I can't always whip out the computer in the hallways and such. =) I hope the pictures will compensate for what I didn't post earlier.

As we site here in Santi's cozy room with rain and wind outside, we are waiting for Cilicia to still come out of surgery. She has been in surgery since 1:30pm. Things seemed to be just a little more difficult then they thought so we heard it will be another 2- 2 1/2 hours. Please continue to pray.

Santi is doing well. It was hard to see him at first, but he has such a good attitude that it really makes you more upbeat and encouraged about his new halo. I think he looks like a Mexican Statue of Liberty! We thought that Santi would have only four screws on his halo apparatus, but he needed seven. The screws don't look all that glamorous, but I think he will heal well and his hair will grow back out on the sides in due time. We are very encouraged with the outcome of the surgery...the Lord has blessed.

We have had great nurses all day, for Santi and Cilicia both. Santi's first nurse when looking at our family picture, asked what the baby's name was. When she heard it was Titus, she said, "Oh! That's just before Philemon!" She was a sweet Christian girl and took great care of Santi.

We were hoping, and the doctors had tried, to get Santi in the same room with Cilicia, but that didn't work out, but again, the Lord has a purpose. We have a wonderful, sweet Christian woman next door with a little baby that needs a liver transplant and is waiting for a call that they have found a match. Please pray for this little girl as well...her name is Dawn, which she said means, "In the Beginning" and being their first child they thought this name appropriate. Little Dawn is ten months old and is very tiny for her age.The mom's name is Laura and she said she feels blessed to have us as roommates, but what a blessing for us!

Santi said he can't wait to walk again and he also said he wants Wendy's food. He can't have Wendy's tonight, but for sure we will get him something tomorrow. These clear, liquid meals are quite interesting and not all that appealing. =) Oh, well...Jello here we come!

Again, thank you for praying. I know the Lord is listening and answering your prayers. What a comfort to know all of you are uplifting us in prayer. The hospital is a needy place full of needy people. Continue to pray that we would be a light for Him.

Anita

In the Waiting Room

2008-06-30T07:34:00.002-04:00

Shands
7:40am

We are sitting here in Shands waiting room while Santi is in pre-op with Dad. Alexis and I (Anita) came to be with Cilicia and help drive back home, as Santi will be staying in the hospital longer than expected.

We had to leave the house at 4:00 this morning! It was a blessed time as sisters and brothers talked and laughed with Santi before leaving...this always means a lot to Santi.

Our trip went well, even with Cilicia having a hard night/morning with the water and pre-surgery meds she had to take. When you think of us, please pray for her as she hasn't eaten since midnight, and really not even "eating" because she was not allowed solids since yesterday afternoon. Her surgery isn't until noon today.

Thanks so much for praying...

A Bed for Santi

2008-06-26T12:13:00.006-04:00

Mrs. Hodges, Santi and Patsy

Last week our family had the privilege of meeting two very special women. In a way, it is because of you who pray for Santi and our family that this came about. Let me explain…

With Santi’s surgery coming up, we were looking into renting a hospital bed that would make him more comfortable and make getting in and out of bed easier. From previous surgeries, we knew a bed would cost around $250 a month to rent. Although this was a matter of prayer for us and our church family, we hadn’t come to a decision as to what company to go with etc.

One evening, a woman from our church decided to do some online shopping/looking for us. She felt the Lord prompting her to inquire about a particular bed she found for sale online here in the area. Through a few e-mails, the lady that owned this hospital bed found out about our family and most importantly, Santi’s need. The owner of the bed wrote and told our friend that without reading everything through about Santi on his blog, she felt the Lord impressing her to give the bed to Santi. Thus began our interaction with Mrs. Hodges, a wonderful, sweet and generous woman who lives about 45 minutes away from us.

It was soo exciting when the day came to get the bed! Not only did the thought of Santi having a comfortable bed bring excitement in this home, but the knowledge that God once again provided for our need! God’s hand is not shortened that He cannot help or hear (Isaiah 59:1)!

We couldn’t have met more sweet and cordial women as Mrs. Hodges and her sister Patsy. Santi brought a drawing for Mrs. Hodges that brought a lot of joy to Santi because it was promised a place of honor on the refrigerator. =) Loading the bed on the truck went smoothly and after everything was secure, we had a special time of prayer. It was special to be able to pray and have that common bond with other Christian believers.

We thank the Lord for providing for us and blessing us with new friends along the way.

I will forever remember pulling away and looking back to see the ladies smiling and waving us off…what joy for them and what peace for me in seeing God’s promise fulfilled….that He would never leave us nor forsake us.

Anita for all the Hurons

Loading up...

Happy Santi

Watching...

Paul, Mrs. Hodges, Mrs. Patsy, Anita, Benuel and Santi

Thanking the Lord...

Goodbye!

Pre-Op for Santi

2008-06-26T10:23:00.005-04:00

Today marks four days until Santi's big day! Early this morning Santi left for Shands, he will undergo several x-rays and tests so doctors can get one last look before Monday's halo surgery. Please pray that doctors would be extra aware of the results of these tests and that the doctor will have clear direction.

Santi eating his big breakfast this morning.

Prayer for Cilicia and Santi

2008-06-20T19:20:00.005-04:00

Dear Praying Brethren,

I thank my God, making mention of thee always in my prayers, Hearing of thy love and faith, which thou hast toward the Lord Jesus, and toward all saints; That the communication of thy faith may become effectual by the acknowledging of every good thing which is in you in Christ Jesus. Philemon 1:4-6

I write these few lines hoping all is well with you and your families. As our family prepares for surgery on June 30^th, we ask that you join us in prayer for our children. The prophet Samuel declared “In my distress I called upon the LORD, and cried to my God: and he did hear my voice out of his temple, and my cry did enter into his ears.” II Sam. 22:7

We are asking if you will please join us as we pray:

For the peace of the Lord to rest upon us. (May He be our refuge)

Peace I leave with you, my peace I give unto you: not as the world giveth, give I unto you. Let not your heart be troubled, neither let it be afraid. John 14:27

That the enemy of our soul be bound from hindering the surgeries.

And the Lord said, Simon, Simon, behold, Satan hath desired to have you, that he may sift you as wheat: 32 But I have prayed for thee, that thy faith fail not: and when thou art converted, strengthen thy brethren. Lk. 22:31-32

Wisdom for the medical personnel that will be attending our children.

So that thou incline thine ear unto wisdom, and apply thine heart to understanding Pr. 2:2

Smooth surgeries without complications.

And the LORD, he it is that doth go before thee; he will be with thee, he will not fail thee, neither forsake thee: fear not, neither be dismayed. Deut. 31:8

Wisdom for Ana and me, if we are needed to make emergency medical decisions.

Behold, thou desirest truth in the inward parts: and in the hidden part thou shalt make me to know wisdom. Ps. 51:6

No infection and that proper healing would take place in both Cilicia and Santiago.

Then shall thy light break forth as the morning, and thine health shall spring forth speedily: and thy righteousness shall go before thee; the glory of the LORD shall be thy rereward. Is. 58:8

That the Lord would use this need in the Huron family for his glory.

But I would ye should understand, brethren, that the things which happened unto me have fallen out rather unto the furtherance of the gospel. Php. 1:12

That every medical bill would be met with the Lord’s provision.

But my God shall supply all your need according to his riches in glory by Christ Jesus. Php. 4:19

We trust that we shall see some of you soon and share God’s faithfulness. May the peace and joy of our Lord Jesus Christ be our strength.

Because of Christ,

Brother Santiago

Galatians 2:20

Fred From Florida

2008-06-05T10:18:00.004-04:00

I know Mr. Fred has nothing to do with Santi, but many of you that visit and pray for Santi aren't from Florida and I thought you might like to see our clothesline friend. Mr. Fred is very social, likes to watch us hang clothes on the line and impress us with his florescent green color. Samuel (2) thinks he looks like an alligator.

Double Booked...

2008-06-04T11:48:00.007-04:00

“Know therefore that the Lord thy God, he is God, the faithful God, which keepeth covenant and mercy with them that love him and keep his commandments to a thousand generations.”

Deuteronomy 7:9

We’ve had some interesting developments since securing the surgery dates for Santi! Santi’s older sister, Cilicia, who will be turning 19 this summer, is having surgery on the very same day as Santi’s halo placement……in the same hospital…..in the same operating room……….and in the same recovery room!

We discovered that Cilicia has one dysfunctional multicystic kidney that needs to be removed. It is amazing that she has been functioning with one kidney all of her life without our knowing about it. She was experiencing some trouble on that side and after several tests with our family practitioner, we were led to have an ultrasound, which revealed the problem.

Please pray now for BOTH brother and sister teaming up at Shands on June 30th! We know that God is indeed faithful and merciful to us and that this situation has fallen out rather unto the furtherance of the gospel. We anticipate Cilicia and Santi being used of the Lord to give testimony of God’s dealings in their lives through this unusual circumstance. At first, we were taken aback by the “double booking”, but realized that it is a blessing. Santi will have his beloved sister with him. Of course, both will need our care and attention, but they will have each other.

Needless to say, we Hurons are keeping watch here at home and are readying ourselves for some major convalescent care!

Surgery Dates for Santi

2008-05-23T11:56:00.003-04:00

We would like to thank all of you for praying for the perfect timing for Santi's surgery. Praise God we now have two dates!

The first surgery date is June 30th for the placing of the halo; he will be in traction for six weeks until August. Santi will be in a wheelchair at all times except for bathroom breaks and for sleeping.
The Lord has been at work for Santi for some time concerning this surgery, the wheelchair that Santi will be using all these weeks was donated to Santi from another little boy who was scheduled to undergo the same halo surgery, but decided to change hospitals, leaving the special made wheelchair without an owner. (God knew that) This wheel chair is a good many thousands of dollars.

The second date, August 18th, is for the actual back surgery. Lord willing, Santi will be in the hospital for a few days and then will be able to come home for the remainder of his healing and another few weeks of traction.

Santi is very excited as he realizes that his prayers have been answered. Every once in a while he will get teary eyed remembering things from previous back surgeries...something about Santi is that he has the most remarkable memory and will recall events and days long gone, with articulate detail. One thing you could pray for Santi is that he will have a peace and trust in God... no worries, no fears.

Please pray for Santi's weight these last few weeks before June 30th, we'd all like him to be as strong and healthy as he can be!

A Day in the Sun

2008-05-14T17:21:00.007-04:00

Our family was able to enjoy a beautiful day at a secluded island in Tarpon Springs this week. Jon-Michael enjoyed conquering the horseshoe crab and bringing it back to the shore for all to see...maybe one or two screamed when the poor thing was released at their feet! Digging in the sand, catching small, slimy things, playing with sea weed...what special, sweet memories.

Santi Blueberry Picking

2008-05-14T17:13:00.004-04:00

This time in Florida blueberry's are ripe! What fun everyone had in trying to find just the perfect berry...

It's Santi's 10th Birthday!

2008-03-03T10:14:00.004-05:00

It's a special day, because it's Santi's birthday! He is now 10 years old!

If you want to leave a birthday blessing, just leave a comment...

Ice Cream and Peanut Butter

2008-02-27T16:06:00.002-05:00

We are still waiting to hear from the hospital about a date for surgery. About a month and a half ago, we took Santi in to see the surgeon that will perform the surgery and he strongly suggested that Santi gain at least ten pounds before the operation. Ten pounds would help cushion the sensitive vertebrae and hardware in Santi’s back and bring about a better outcome for healing. We decided to place Santi on a concentrated diet majoring on high calorie intake. Anita and Cilicia did some research online and discovered calorie counters and many recipes for high calorie foods that Santi could eat to help him gain weight. Santi has always been challenged to put weight on; together with his high metabolism, he’s had issues with reflux and spinal pain that have all contributed to a light appetite and lower weight.

Now, after success with the recipes which include lots of ice cream shakes, sour cream, and extra butter on his toast, he has gained 3 pounds since we started at the beginning of January! We are so thrilled! Santi knows he has to be diligent with his eating. The girls set a timer to let us all know it’s time for his snack. He eats 3 regular meals throughout the day, but also 3 extra large snacks in between. His favorite is peanut butter spoons!

We continue to watch him for signs of pain as he doesn’t ever tell us when he’s hurting. Usually after a long, strenuous day of activity, we know to give him a Motrin tablet to relieve the pain and discomfort in his back. It helps him to rest easy. Long walks or long play times are getting harder for him.

Please continue to pray for Santi as he deals with increased curvature and consequently more pain.
Pray for the doctors and nurses that will perform the surgery that their hands will move with surety and gentleness.
Pray that his spinal cord will be protected during the surgery and even afterwards preventing any nerve damage, which is a great concern.

Thank you again and God bless each of you as we hear of your love and faith in Jesus; for continuing to bring us refreshment through your prayer and loving concern for us.

The Lindsey Family

2008-02-27T15:57:00.006-05:00

We had a surprise and wonderful visit from long-time friends, The Lindsey Family! Skip and Tammy have ten children and bought a bus here in Florida. Yes, a bus! They need it for travel as they go from place to place singing…..We met the Lindseys years ago in New York…thank you Stoltzfus family for introducing us to this great family.

What a joyous 2 days we had with them……singing, relaxing, eating, and sharing Jesus. Little Timothy could NOT BELIEVE how much sugar we put into our lemonade!!! I’ve never seen a more shocked four-year old.

Here’s a picture of Santi with Skip having dessert….Yes, it’s Oreo cookies and milk. We have Skip to thank for showing us the proper and civilized way to eat Oreos. (We were absolute barbarians before we met Skip.)

Here are the detailed steps:

Ten Successful Steps on How to Properly Eat an Oreo

First, you must have a package of fresh, crispy Oreo cookies. Now they make them with a nifty easy-peel opening in the top of the package. This is so that you can concentrate more on the eating and not the opening….
Next, you must have a fork. This is what makes this technique, not only civilized, but absolutely dignified.
The milk must be cold. (Who likes lukewarm milk, especially when getting ready to dip Oreos?)
You must have the correct “depth of dunkability”. Too shallow and you will end up with a sad mixture of crunchy and soft cookie. Disappointing. Too deep and you will have a lot of leftover black-spotted milk you won’t feel like drinking. This is troublesome to mothers and fathers who know the value of milk these days….don’t want it too deep.
Now that you are ready with the supplies, carefully pierce the white soft inner portion of the Oreo with the fork. You must be careful NOT to separate the cookies. This technique may take lots of practice….perhaps someone in your family won’t mind eating the “practice” pieces?
Carefully dunk the forked cookie down into the cold milk and WAIT…….
WAIT……until all the bubbles go away. This step takes patience. You may be tempted to bring the cookie up too early...not soft enough. You may also wait too long and…..lose the whole thing into the bottom of the cup…..Mother will really frown then……
WAIT……(Skip says this is the most important thing…)
Place the just-right, perfectly-combined-sensation-of-crunchy-and-soft Oreo into your mouth.
Resist eating the entire package, please!

Mac and Beth Lynch

2008-02-27T15:45:00.006-05:00

On Saturday, January 26^th, we all had a very special visit from dear friends, Mac and Beth Lynch! Mac and Beth live and minister at the Wilds Camp in the beautiful Blue Ridge Mountains, but were in Florida for an engagement here in Tampa. We were so excited that they could both come and squeeze in at our 12 foot table. We enjoyed serving “mojo” chicken….Beth had never heard of it!! Must be a Latin thing….and for dessert….a cake we now call “The Lynch Cake”. For the complicated recipe of our delicious Lynch Cake see below:

1 Very Deep Chocolately Chocolate Cake Mix

1 tub of Equally Chocolately Chocolate Frosting

Chopped Macadamia Nuts

Follow baking directions on the box and bake in 2 round cake pans. Cool cakes, then lightly frost between layers. Frost entire cake, then press chopped nuts on top and sides. That’s it! The combination of sweet and salty is just right…….just like Mac and Beth.

Santi just loves Mac and Beth…but especially Beth….sorry, Mac. Can you see how sweet they are together? Thank you for your new CD….”Journey”….how beautiful………..

A Letter In The Mail...

2008-01-25T11:13:00.001-05:00

Yesterday Santi received a sweet letter in the mail from one of his friends in Georgia. This gift was designated for Santi's weight gain! Watch out, McDonald's...here we come!!

Right now we have Santi on a 3,000 calorie diet. He's been such a trooper downing all those smoothies and shakes. We're watching for the scale to tip!

"Use this to gain some weight. I'm praying for you."

Thank You Jacob Shelton! -Santi

Are You Ready?

2008-01-14T08:19:00.000-05:00

This is a short clip taken from an interview with IVLeague Media of Florida. We appreciate all that IVLmedia stands for and for allowing us to post this.

The Waiting Room

2008-01-08T20:00:00.000-05:00

This morning, Santiago, Santi, and I sat in the waiting room of the Shands Spine Clinic. Too rushed to have had breakfast, but armed with two granola bars, we sat to hear Santi's name called. How often had we been here before? Too many times to count....Santi knows the "toy" corner by heart and didn't care to play today. Huge athletic men stride by....saying hello requires me to bend my neck all the way back. Those big guys (athletes from the University of Florida) always have a smile for Santi and pat his head as we leave the elevator.

Time to update our records for the new year...yes, all the information is still the same. "The doctor will call you soon." I brought my knitting and Santiago brought his Bible and study books. Santi sits and waits.

Finally....time for x-rays. The kind technician remembers us and says he's missed Santi....."What's up, my man?" The man who once built a brace for Santi strolls by and waves....what's up?

Weight and height check....taller and heavier! What a victory.....48 pounds!

We are led to another waiting room and arrange ourselves again. Santiago reads aloud to me while I knit. Finally, Dr. Woo comes in and he has good news. The bulge we were concerned about is nothing serious....just the body's defense against chafing from the hardware bending out of alignment on Santi's spine. The bulge is a pocket of fluid and is harmless. Whew! Sigh of relief from all. Traction may go on as before, which will now happen in February. Oh my! We thought it would be January.

On to yet another waiting room to update more records. The poor girl at her computer has not had breakfast. I leave a granola bar on her desk and she runs after us to thank us! We can love with granola bars......while we wait.

We are in the Lord's waiting room. We wait and He works. We stay busy and productive while God fulfills His plan. This waiting is preparing us for greater things and so we learn to embrace the waiting and rejoice in it. God doesn't have problems....He has plans.

"But if we hope for that we see not, then do we with patience wait for it."
(Romans 8:25)

Prayer Requests:

Santi needs to gain at least 10 pounds in the next three months. Ten extra pounds of fat would facilitate a better surgery outcome. We would like to avoid the placement of a feeding tube.
Santi's spinal cord is stretched over curves that may cause a decrease in blood flow through the cord. Since his growth is slow just now, the blood flow is adequate to the stretching, but we need to watch Santi for any decrease in energy, activity or strength. Santi remains active and energetic which is a good indication of the strength of the spinal cord.
Pray that our surgery date for traction would be set immediately.

Thank you so much for your continued prayer as we wait......
~Ana~

The Littlest of These

2008-01-08T06:45:00.000-05:00

Little Samuel praying and talking with Santi on the couch.

New Developments

2008-01-07T17:32:00.000-05:00

Yesterday morning as we were helping Santi get ready for Sunday morning church service, he complained of being in pain...Santi seldom complains of pain...after examining Santi's back we discovered an inflamed place on his left side. we were also concerned to see him walking with a pronounced limp.

He stayed down all day with some books and tapes. This was difficult for him as he loves to go outside to play. He cried when we told him he would have to stay home from church....he loves to go to church.....

Today we do see an improvement in his walking and he said the pain has lessened!

We have an appointment with our Dr. at Shands tomorrow at 8:00am. Please pray for wisdom, knowledge and understanding...

Even Before I Call

2007-11-29T21:50:00.000-05:00

Yesterday, our family spent much of the day in prayer, very much aware that the Lord was listening and moving on our behalf. Last night as our church gathered for our usual prayer meeting, we were on our knees praying, when my phone vibrated. Since we were in prayer, I didn't answer it. Little did I know that as we were praying, Dr. Woo was trying to call us with good news. I tried to return the missed call on the way home from church, but was unsuccessful. When we arrived home, we saw that the number belonged to our Dr., and he had left a message on our home phone...

"And it shall come to pass, that before they call, I will answer; and while they are yet speaking, I will hear." Isaiah 65:24"

I will bless the Lord at all times: his praise shall continually be in my mouth. O magnify the Lord with me, and let us exalt his name together." Psalm 34:1,3

Thank you so much for your generosity and persistence in prayer for our Santi. We had a returned phone call from Dr. Woo this evening and he was excited to tell us of his meeting with the CEO of Shands Hospital. Dr. Woo had written an appeal in September and was finally granted this meeting. He asked if the hospital would do Santi's surgery as a teaching case (this would mean minimal financial obligation for us). He stated that he was shocked to see how "surprisingly easy he was to convince" of Santi's need for this surgery! We know it is the prayer of the saints on his behalf.

Now the hospital's CEO will meet with the CEO of the Physician's Group. Dr. Woo felt confident that this would go well also.

Please continue to be in prayer with us as tomorrow, I am expecting a call about an interview with Shands Hospital. This interview will set things in motion. We also realize that though the surgeries may be cost-free to us because of the hospital's decision, other costs will ensue such as the ambulance ride home for Santi after he is placed in the halo, hospital bed rental, medications for pain, etc.

Time frame? Due to the Christmas holidays, we are looking at the possibility of the halo placement in early January.

God bless you all for your love and support.

Brother Santiago

Wednesday Meeting

2007-11-27T15:20:00.000-05:00

Tomorrow, November 28th, is an important meeting day for Dr. Woo and we are asking that you all join us in prayer. The Hurons will be devoting the day for fasting and prayer about the matter.

Dr. Woo is meeting with the Chief Executive Officer of Shands Hospital as he would like to personally present Santi's profile and case history and appeal to have the surgery be taken on as a teaching case. If the CEO agrees and consents to Dr. Woo's appeal, this surgery will cost us nothing. We don't know the time of the meeting. He must also meet with the CEO of the Physician Group, but if Shands says "yes", the physicians will also likely agree.

It is a very exciting proposition and so amazing to think that all expenses for the traction/halo surgery and the spinal fusion surgery following, would be provided in full.

Please pray with us.....

"...he went out into a mountain to pray, and continued all night in prayer to God." Luke 6:12

Santi

2007-11-26T12:10:00.001-05:00